YspeopleExplore tab

A Christmas poem inspired by a brave little boy


Thumb download

About Cystic Fibrosis WA

Our mission is to contribute to the social, physical and emotional wellbeing of those affected by cystic fibrosis and to assist in the promotion of research.


A truly touching Christmas story from Ys partner charity, Cystic Fibrosis WA.

As Christmas approaches, traditionally our work at Cystic Fibrosis WA slows down. We take the opportunity to catch up on our filing and archiving,

Cystic Fibrosis WA is aiming for a world free of CF.

Cystic Fibrosis WA is aiming for a world free of CF. Picture: Shutterstock

It was while doing that this week that I came across a truly amazing Christmas story.
In 2012, Cystic Fibrosis WA entered an international competition to write a short poem about our work, a competition run by the CTK Foundation in the USA.
We put together a poem that was inspired by a young boy living with CF who came into my office just before Christmas that year.
I asked him what he wanted for Christmas, he smiled though his pain an discomfort and said simply: "A day off, please".

Sadly, he is no longer with us.

This poem is for him:

Pounding purging, coughing, splurging
Rubbing, hitting, gasping, spitting,
Breathless breathing 
Constant yearning. 

One day off is all I need,

One day’s living free of care,
One day as a normal child
A chance to steal some cool, clear air.
Happy Christmas everyone, especially all you lovely people at Ys.

May 2018 bring us ever closer to our vision of a world where lives are unaffected by CF.

Banner 2
| Your rating
No ratings yet


Related stories

WA PCYC North West Metropolitan Program .

WA PCYC North West Metropolitan Program

WA PCYC delivers truckloads of fun to youth in North West Metro Area

Noble Schools Charity Service Police PCYC
Expand
About 1 month ago
(Kindness)
These recipients are proving that organ donation is life.

Transplant athletes flying flag for organ donation

For proof of the benefits of organ and tissue donation, you need look no further than these elite athletes.

Fitness Health Support a Cause Sport
Expand
2 months ago
(Kindness)
Young people from the Kalgoorlie PCYC Friday night Safe Space program leave their mark on the mural.

Youth projects unearthing gold in Kalgoorlie

A stunning mural of an iconic Goldfields landmark is just one of many new projects underway for Kalgoorlie PCYC.

Kindness Community Support a Cause
Expand
2 months ago
(Kindness)
photo credit @geoff.

Why invest in women and girls?

As we celebrate International Women's Day today, we'd love you to ponder this Desmond Tutu quote, which we totally agree with.

Kindness Community Support a Cause
Expand
2 months ago
(Kindness)
In rural Rwanda .

What is social justice?

On the international calendar, today is the World Day of Social Justice. Here at Foxglove Project, we are reflecting on what...

Food Community Support a Cause
Expand
3 months ago
(Kindness)
Helping families in need at Christmas.

You're a generous bunch. Thankyou!

The results from our 2017 Christmas Appeal are in and we’re excited to say that it was our most successful appeal yet.

Food Community Support a Cause
Expand
3 months ago
(Kindness)
Mark Brewer is an inspiration.

Here's why Mark Brewer is all heart

Ten years after receiving a heart transplant, Tasmanian Mark Brewer is reaching new dizzy heights.

Support a Cause Health Sport
Expand
4 months ago
(Kindness)
Donate food or toys in the Hawaiian Giving Boxes in Hawaiian Shopping Centres in Perth.

Perth digs deep to help families in need this Christmas

Hawaiian Giving Boxes help two worthy WA charities, Foodbank WA and Anglicare WA, provide a brighter Christmas to local...

Giving Christmas Social causes Charity
Expand
5 months ago
(Kindness)
Foxglove's first book 'Twenty Reasons to Believe".

Foxglove Project's inspirational book available now

Foxglove's first book is available now and truly inspirational.

Social causes Charity
Expand
5 months ago
(Kindness)

Have your say!

Your Great Australians

Trending stories
It's the base model.

A sting in its tail - the 2018 Kia Stinger 200 S

Unless you’ve been hiding...

(Pastimes) 21 days ago
I hope to leap into a kinder, less judgmental 2018.

Let's spread more kindness in 2018

In 2018, I'd like to live...

(Kindness) 5 months ago
Suzuki's cute little Ignis SUV has a lot going for it.

Review: 2017 Suzuki Ignis GL and GLX

Japanese car maker Suzuki,...

(Pastimes) 10 months ago
Ever had a brainwave like this? Picture: Shutterstock.

Mindblowing shower thoughts worth sharing

You know those flashes of...

(Entertainment & Culture) 3 months ago
Coffee and a book, what could be better? (Image: Shutterstock).

Books recommended by you, for you!

Your suggestions for...

(Entertainment & Culture) 3 months ago
Weekly Poll
Photographic memories
Hizgg0vzzqvwc9xicknk
It's 35 years since the Ash Wednesday bushfires in South Australia and Victoria claimed 75 lives and more than 2500 buildings.